83: A Voice and Care for Potentially Isolated Niches and More

Somehow thinking about spring led me to today's Donations by the Dozen, Caring Voice Coalition. CVC cares for patients with orphan or ultra-orphan disease. These can be very rare diseases or common diseases not financially beneficial for pharmaceutical companies to invest in medicines for them."Caring Voice Coalition possesses a unique and holistic approach to improving the lives of patients with chronic illnesses. From comprehensive outreach programs to services aimed at financial, emotional and educational support, Caring Voice Coalition has empowered and supported patients and their families, as well as the friends who care for them." (http://www.caringvoice.org/2011/09/our-story/) The diseases CVC supports can be found here http://www.caringvoice.org/supported-diseases/. With many resources offered and a list of other resources, Caring Voice Coalition appears to have created a widespread community from unique niches who may not have local support.
CVC  publishes "Community Magazine" quarterly, and I appreciate how it truly intends to educate, foster support, and create a community amongst people who may feel isolated by the rarity of the disease. The issues feature case workers, case studies, personal stories, strategies, and more with an inclusive, educational, and empathetic approach.

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Thanks and cheers to charity